The FMF Foundation
The FMF Foundation is dedicated to improving the lives of FMF patients. Founder and President, Janine Jagger, M.P.H., Ph.D., was diagnosed with FMF in 2006. Her connection to the patient community led to a recognition of its potential as partner and leader in all areas of progress related to this rare disease. The Foundation formalizes an advocacy platform for FMF patients. Connecting with FMF and rare disease patient networks around the globe, and relying on expertise and resources within the FMF patient community, the Foundation will increase awareness of FMF both in the medical community and in society, and will work toward the goals and needs of FMF patients: by serving as a source for information, by improving access to medical care and treatments, by representing FMF patients on policy and regulatory issues; by giving FMF patients collectively a voice to represent themselves and to communicate with the medical community and to achieve acceptance in society; and by leaving no stone unturned in the effort to advance science so that we may offer a healthy life to our family members and our descendants. The FMF patient community, rich with experience, expertise and high hopes, is our greatest resource as we forge our path forward.