FMF Foundation | OPtIN
Online Patient Information Network. Patients who sign up for the OPtIN program will participate in a wide range of information exchange. Participation and management of OPtIN will remain under the management of FMF patients. OPtIN includes an FMF patient registry, a colchicine registry which will track patient response to different brands of colchicine, an IL-1 blocker (biologics) registry which will track patients’ response to different brands of biologics. OPtIN will conduct fast turn-around patient polls and surveys on topics of interest and concern within the patient community. Aggregate results will be posted on the FMF Foundation website as reports.
(Link to registry coming soon)